Informal male family caregivers of patients with Alzheimer’s disease

The experiences and the significance for men

Abstract

In the light of an increase of the elderly population, the small numbers of male informal caregivers assisting patients with Alzheimer’s disease (AD) demand scientific studies to understand the dynamics and the functioning of this type of care. This study aimed to characterize the informal caregivers and identify their possible motivations and contexts as well as stress levels in the relationship with the patients and their families. The instruments used were: (a) a sociodemographic questionnaire to identify the caregiver’s profile; (b) semi-structured interviews; (c) protocol Zarit Burden Interview (ZBI). Participants were selected from the database of caregivers and companions of Alzheimer’s patients at the Taguatinga’s Joint Healthcare Unit (UMT). The protocol corroborated with the state of art and pointed out moderated levels of stress. The transcripts of their accounts were grouped and interpreted in the categories named as context, motivations, experiences in the role of caring and male caregiver. It was found that AD induces changes in the routine, which can bring inflexibility of time. The family and friend’s support with the symbolic reciprocity of gratitude for the patient and the caregiver make the work easier.