Body representations of people with HIV/AIDS
between visibility and secrecy
DOI:
https://doi.org/10.5935/1415-2762.20140065Keywords:
Body Image, Acquired Immunodeficiency Syndrome, Prejudice, Delivery of Health Care, Nursing CareAbstract
Major advances have been made in public policies for the treatment of AIDS; however, from the point of view of PLWHA, there were few changes in relation to the stigma attached to the disease. Physical changes due to the use of multi antiretroviral drugs (ARV) make the disease visible and, in consequence, change people's social relations and the experience of corporeity. The present study aims at understanding how those body changes are perceived and experienced by PLWHA. Data was collected through in-depth open-ended interviews that were afterwards transcribed and analyzed using the structural analysis of narratives. The representations identified were divided in two categories: 1) body being treated and visibility of the disease; 2) secrecy and prejudice in the experience of corporeity. Both are supported by representations concerning Visibility and Secrecy, which constituted the theoretical categories of this study. Secrecy is central to the interviewee's experience of corporeity. Health education in secondary prevention through the promotion of actions based on building a positive body image can improve PLWHA quality of life, as well as their social and affective interactions.References
1. Alencar TMD, Nemes MIB, Velloso MA. Transformações da “aids aguda” para a “AIDS crônica”: percepção corporal e intervenções cirúrgicas entre pessoas vivendo com HIV e aids. Ciênc Saúde Coletiva. 2008; 13(6):1841-9.
2. Cardona-Arias JA. Representaciones sociales de calidad de vida relacionada con la salud em personas con VIH/SIDA, Medellín, Colombia. Rev Salud Pública. 2010; 12(5):765-76.
3. Fernandes APM, Sanches RS, Mill J, Lucy D, Palha PF, Dalri MCB. Lipodystrophy syndrome associated with antiretroviral therapy in HIV patients: considerations for psychosocial aspects.Rev Latino-Am Enferm. 2007; 15(5):1041-5.
4. Santin S. Corporeidade. In González FJ, Fensterseifer PE. Dicionário crítico de educação física. Porto Alegre: Unijuí; 2005. p.103-4.
5. Le Breton D. Antropologia do corpo e modernidade. Petrópolis: Vozes; 2011. 407 p.
6. Goffman E. Estigma: notas sobre a manipulação da identidade deteriorada. Rio de Janeiro: Guanabara Koogan; 1988.
7. Chizzotti A. A pesquisa qualitativa em ciências humanas e sociais: evolução e desafios. Ver Port Educação. 2003; 16(2):221-36.
8. Giami A, Veil C. Enfermeiras frente à aids: representações e condutas, permanência e mudanças. Canoas: Ulbra; 1997. 333 p.
9. Demazière D, Dubar C. Analyser les entretiens biographiques, l’exemple de récits d’insertion. Paris: Nathan, Coll. Essais & recherches; 1997. 287p
10. Denzin NK, Lincoln YS. O planejamento da pesquisa qualitativa: teorias e abordagens. 2ª ed. Porto Alegre: Artmed; 2006. 432p.
11. Cassirer E, Lacoste J. Hansen-Love, O. La philosophie des formes symboliques, tome 1: Le langage. Paris: Editions de Minuit; 1972.
12. Barthes R, Greimas CB, Eco U, Gritti J. Análise estrutural da narrativa. Petrópolis: Vozes; 2008. 300p.
13. Blashill AJ, Gordon JR, Safren AS. Appearance concerns and psychological distress among hiv-infected individuals with injection druguse histories: prospective analyses. AIDS Care. 2012; 24(9):557-61.
14. Cabrero E, GriffaL, Burgus A. Prevalence and impact of body physical changes in HIV patients treated with highly active antiretroviral therapy: results from a study on patient and physician perceptions. AIDS Care. 2010; 24(1):5-13.
15. Brasil. Ministério da Saúde. Secretaria de Vigilância em Saúde. Departamento de DST, AIDS e Hepatites Virais. Recomendações para a pratica de atividades físicas para pessoas vivendo com HIV e AIDS. Brasília: Ministério da Saúde; 2012. 86 p.
16. Grov C, Golub SA, Parsons JT, Brennan M, Karpiak SE. Loneliness and HIVrelated stigma explain depression among older HIV-positive adults. AIDS Patient Care STDs. 2010; 22(5):630-9.
17. Renesto HMF, Falbo AR, Souza E, Vasconcelos MG. Enfrentamento e percepção da mulher em relação à infecção pelo HIV. Rev Saúde Pública. 2014; 48(1):36-42.
18. Psaros C, Barinas J, Robbins GK, Bedoya CA, Safren SA, Park ER. Intimacy and sexual decision making: exploringthe perspective of hiv positive women over 50. AIDS Patient Care STDS. 2012; 26(12):755-60.
19. Surkan PJ, Mukherjee JS, Williams DR, Eustache E, Louise E, Jean-Paul TL, ET al. Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti. AIDS Care. 2010; 22(7):803-15.
20. Petitat A. Segredo e morfogênese social. In: Petitat A. Secret et formes sociales. Paris: PUF; 1998. Cap. IV.
21. Santos WJ, Drumond EF, Gomes AS, Corrêa CM, Freitas MIF. Barreiras e aspectos facilitadores da adesão à terapia antirretroviral na ótica de pessoas que vivem com HIV/Aids em Belo Horizonte, Minas Gerais. Rev Bras Enferm. 2011; 64:1028-37.
22. Serovichi JM, Mc Dowell TL, Grafsky EL. Women’s report of regret of HIV disclosure to family, friends and sex partners. AIDS Behav. 2008; 12(2):227-31.
23. Taylor SE. Positive illusions: creative self-deception and the healthy mind. New York: Basic Books; 1989.
Downloads
Published
Issue
Section
License
Copyright (c) 2014 Reme: Revista Mineira de Enfermagem
This work is licensed under a Creative Commons Attribution 4.0 International License.
Links
Facebook
Instagram
Twitter
