Family vulnerability of children with special needs of multiple, complex and continuous care

Authors

  • Beatriz Caroline Dias Grupo NotreDame Intermédica, Hospital Santa Cecília, Unidade de Internação Pediátrica, São Paulo SP , Brazil, Enfermeira. Mestre em Enfermagem. Grupo NotreDame Intermédica, Hospital Santa Cecília, Unidade de Internação Pediátrica. São Paulo, SP - Brasil
  • Guilherme Oliveira de Arruda Universidade Estadual de Maringá, Programa de Pósgraduação em Enfermagem, Maringá PR , Brazil, Enfermeiro. Doutorando em Enfermagem. Universidade Estadual de Maringá-UEM, Programa de Pósgraduação em Enfermagem. Maringá, PR - Brasil, Universidade Estadual de Maringá
  • Sonia Silva Marcon UEM, Departamento de Enfermagem, Programa de Pós-graduação em Enfermagem, Maringá PR , Brazil, Enfermeira. Doutora em Enfermagem. Professora Titular. UEM, Departamento de Enfermagem, Programa de Pós-graduação em Enfermagem. Maringá, PR - Brasil, Universidade Estadual de Maringá

DOI:

https://doi.org/10.5935/1415-2762.20170037

Keywords:

Vulnerability Analysis, Health Vulnerability, Pediatric Nursing, Child Health, Family Nursing

Abstract

The aim of this study was to identify the family vulnerability of children with multiple, complex and continuous special needs. It is a crosssectional
study with families of 68 children. Data were collected from June to September 2015, through interviews conducted at home. Nonprobabilistic
sampling was used for convenience, and data were analyzed by means of descriptive statistics and Pearson's correlation. All
families were vulnerable, however, 8.8% presented up to 40% vulnerability. In this study, it was identified a notable individual vulnerability due
to the clinical fragility of the child, social exclusion, and programmatic regarding the precariousness of access to health services. Health care
networks need to be re-evaluated by their managers in order to provide access and care to this population. It is also important to invest in
the training of qualified professionals to work in primary care, who understand the context of the families and value their vulnerability in the
implementation of care actions.

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Published

2017-11-09

Issue

Vol. 21 (2017)

Section

Research

License

Copyright (c) 2017 Reme: Revista Mineira de Enfermagem

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This work is licensed under a Creative Commons Attribution 4.0 International License.

How to Cite

1.
Family vulnerability of children with special needs of multiple, complex and continuous care. REME Rev Min Enferm. [Internet]. 2017 Nov. 9 [cited 2025 Dec. 14];21. Available from: https://periodicos.ufmg.br/index.php/reme/article/view/49881

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